The group started following the suggestion of our Honorary President Dr Laura Moss, Consultant Oncologist at Velindre Cancer Centre and Tenovus Specialist Nurse Heidi Trotman.
Patients were canvassed and a very positive response was received. Our self help group was formed and first met in January 2004.
We meet approximately every eight weeks and you are always very welcome to attend.
Although we are based in Wales we have been able to provide support to patients from across the world.
We really work hard to try and make a difference.
We are the only registered charity in Wales supporting this rare form of cancer l Tel: 0845 009 2737 l Registered Charity No 1113774